Hello, back in march 2020 me and my partner lost our little boy Jenson at birth due too complications with charge syndrome. It was shock and something we still coming terms with. The syndrome is still very much unheard of.
Too mark Jenson's second anniversary this year. I have decided to raise money too help other families with children that have charge syndrome and too raise awareness for charge syndrome. We will be doing an epic walk from Rockfish in Exmouth to just past Old Harry Rocks in Studland. We will be doing this walk on March 11th, it will take up to 36-48 hours and it’s around 100 miles.My friends and brothers have volunteered to join me in doing this. We hope you can support us by donating and sharing awareness of the syndrome.
More information for this fundraiser can be found on their social media pages