About

MRKH (short for Mayer-Rokitansky-Kuster-Hauser Syndrome) is a congenital condition that affects between 1 in 4500-5000 born females and is characterised by the underdevelopment of the uterus and vaginal canal. ​ Due to the underdevelopment of the uterus, people with MRKH are unable to get pregnant, they will never be able to carry their own baby. ​ The condition is most commonly diagnosed in adolescence, at around age 16/17 due to the absence of the first menstrual period so, once diagnosed, the person’s life changes forever. Being told as a teen that you can never carry a baby is devastating, and so many of the support groups out there are run by incredible people with MRKH who are a lot further along in their journey than where these teens are.

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