raised of £250 target from 24 people

Rachael Ritchie is raising £250 for Polymicrogyria Family Support
Please read all the way to the bottom. This year I am Raising money for Polymicrogyria Family Support charity by entering charity pink collar boxing match with serious training for 8 weeks before the big night which is 17th April. Why? I wanted to raise money for a charity linked with someone who I know would benefit from the good work they do, I asked friends if they minded me highlighting their little boys fight with PMG. Here's their story: In June 2014 our beautiful son and much loved little brother came into our lives. At 15 weeks old, Laurence began to seizure and was rushed to hospital. After bloods, CT scans, EEG and MRI under general anaesthetic, Laurence was diagnosed with Polymicrogyria and epilepsy. This two week journey ended with sympathetic neurologist handing us sheets of paper which spelt out that everything you take for granted that your child will do are no longer certain. Above all, the line 'May to make it into adulthood' was delivered. That day, we began to grieve the loss of a future for our son, we hadn't even perceived. It dat on our chest and stole our breath, our joy and the earth beneath our feet. Life changed forever. With the acceptance comes the underlying stress that still remains as epilepsy could steal pieces of our son one at a time. Polymicrogyria (PMG) is a brain abnormality that means many small bumps, it causes epilepsy which can be difficult to control and this becomes increasingly so as a child gets older. It can affect all aspects of a child's development including speech, feeding, intellect and fine and large motor skills, that we all take as granted. Children with brain abnormalities are so more susceptible to chest infections. A recent 'nor,al' childhood viral temperature resulted in a 20 minute seizure or Laurence, a simple virus in December resulted in a hospital stay due to breathing difficulties. Laurence is now 20 months old, he is globally developmentally delayed. He doesn't walk or crawl, but he does a neat bum shuffle. Laurence is never seizure free and like most children with PMG he has had other complications including, bilateral cataracts which resulted in the loss of his sight within each 5 weeks last year and consequently undergoing operations to restore this. Meeting other families who have been affected by PMG has helped us to accept, understand and embrace our future. When we are feeling challenged, our PMG family is there to shades their experiences and give support and advice. We gain hope from sharing in the achievements of our PMG stats and share our pain in the challengers the condition throws at us. Rebecca and Rob Laurence's mummy and daddy


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Fundraising for

The mission of our charity is to both raise awareness on Polymicrogyria and to raise money for families that are affected by the conditio...