Elodie’s arrival into the world came seven weeks premature in 2021, and she endured the toughest of starts to life as a result of medical negligence during pregnancy. Born with a severe brain injury, little Elodie has since been diagnosed with numerous medical conditions including cerebral palsy, cerebral vision impairment and epilepsy as well as a hearing impairment.
Since her birth, Elodie’s family has repeatedly requested support from the NHS for her conditions along with equipment to help with her day-to-day care and development. Sadly, these requests have largely been unsuccessful which has provided a huge source of frustration.
Elodie’s Wish was created by her family as they realised that, although there have been incredible advances in modern medicine and technology to aid many of the conditions listed above, the potential for children like Elodie to progress and develop is severely hampered by the lack of availability of those medical and technological advancements through the NHS.
Elodie’s Wish hopes to raise awareness and funds to be able to bring treatments such as neurological modulisation, paediatric ophthalmology, physiotherapy, vision therapy and speech and language therapy to the local area to give children like Elodie the best possible chance to live a normal life.
Elodie's Wish' first project is to create a document "My First Year" for parents who have received the same diagnosis as Elodie to know how to navigate their first year and to provide a source for advice, resources, support, a directory for therapies, a guide to navigating what and when the NHS should be supporting, a check list what to look out for in your child such s seizures, spacticty etc. Elodie's Mum has spent hours an hours battling with the NHS for support, researched so many alternative therapies from all over the world, joined clinical trials, alternative medicine and we want to make all of that available to everyone who is in her position to make that hard first year a little easier.
Our first fundraising target is to get that document into production as well as to buy Elodie a walker that isn't available in the UK (Canada). the Trexo, is a robotic walker that unlike the static ones available on the NHS uses robotics to move the childs legs, of which the repetition increases stimuli to the brain, using neuroplasticity to create new pathways to help the child begin to learn to walk. These machines are £40,000 plus delivery to the UK.
Dr Crawford and Dr Melillo have developed a products CalledNeurosolutions it is a red light intensive laser which is used across the head/body to heal the areas that have sustained damage in the brain. This isn't available in the UK but DR Crawford offers online training and will send the devices over seas, the devices and training costs £15,000.
In addition to this we want to give back to the community so whatever we purchase we want this to be available for other children, so we will ensure is also used by other children in Elodie's network.
This is our target.