Hope for HH UK

hopeforhh.org/

£5,462

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Story
The charity is set up and run by parents of children with this condition and an adult sufferer of the condition. Our aims as a charity are to increase awareness of the condition and fundraise to support further research, provide information and support to hypothalamic hamartoma patients, caregivers, and healthcare providers and to promote research toward early detection, improved treatments, living with HH, and a cure.
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