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Rett Syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday, leaving them with multiple disabilities and medical complexities for life.

We’re a forward-thinking organisation, full of heart, positivity and optimism.

Not only do we raise funds for research into treatments and a cure, but we also connect people whose lives and careers have been affected by Rett Syndrome with a network of researchers, medical professionals and families who understand what living with the condition is really like.

We also work with UK clinicians so that when treatments and a cure becomes available, they will be available to our children too.

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